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Follow your heart

Posted on Jan 27, 2019

This is a title of a book written by an Italian writer that was published several years ago. Very often the title can be applied to our lives. Often our life leads us where we would never imagine to arrive. Recently two years have passed since the start of our project of sustain to parents of children with Down syndrome. At the beginning, as many of you can remember, we didn’t think of creating a project, but it was only a meeting with several moms who had questions about the present and the future of their children, and one Italian professor came to Almaty with different purposes. From that simple and humble beginning a project was born, one that now unites several hundred children with their families. A little bit more than two years later we found ourselves on the plane that took us on a more than three hour journey from Almaty, the city of origin of this story. Atyrau is a city situated at the Caspian Sea. We are strengthening relations of friendship and collaboration with the Caritas community there. For several months parents of children with Down syndrome have been waiting for the arrival of professor Sangalli and our team from Almaty, to launch the operational phase of the project after several preparatory meetings. Professor Sangalli examined almost 50 children and gave each of them a program of development that their parents should work on at home. In addition to that, Zhanna, the employee responsible for the project in Almaty, provided parents with a detailed description of the program and we assured them that was only the start of our relationship and if they wish it can be continued in the future.

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The arrival of a professor who came to Atyrau from Italy attracted several journalists who asked him questions about the aim of the visit and future perspectives of the project. There were journalists from a local newspaper and a news channel. The story was broadcasted in the evening news segment.

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After the departure of professor Sangalli we’ve had an opportunity to meet separately with parents of older children, with whom we talked about the necessity to create opportunities for professional formation and to create jobs for young adults with Down syndrome who otherwise will be locked up at home. Challenges like these are very difficult, but our children’s strong-willed mothers always give us hope that we’ll be able to overcome the most difficult obstacles.